life with hearing loss – Schpilkes The Blog

I Do Not Hear, and He Does Not Listen

A deeply personal essay about sudden hearing loss, marriage, and the invisible gap between sound and understanding.

I like to say that my left ear is for decorative purposes only. It holds my glasses and I can put beautiful jewelry in it — beyond that, nothing more. I simply have no other use for it.

Five and a half years ago, I lost my hearing overnight. I went to bed with severe ringing and woke up to silence.

I saw doctors. I had a brain MRI. They found nothing wrong with my brain — contrary to what my husband thinks. I got the typical solution when no clear diagnosis appears: a virus.

I love the virus diagnosis. It encompasses everything and yet explains absolutely nothing.

My left ear has five percent hearing, which in reality amounts to nothing. Hence, decorative purposes only.

My right ear is slightly better — but only slightly. I wear hearing aids. Good, expensive ones. And yet my hearing will never be the same.

I love it when people say, “But you wear hearing aids — can’t you hear normally?”

No. I can’t.

Hearing aids are not glasses. They do not fix the problem 100%. If anything, they sometimes create more noise.

The world is a very loud place. Very loud.

My brain does not always tolerate the constant sound. In loud places, it takes enormous effort to figure out where sounds are coming from and what people are saying. Sometimes I just want to go home, take out the aids, swallow two painkillers, and sit in silence with the migraine that follows.

Those around us who have not experienced this often don’t understand — even the ones who walked through the hearing loss journey with us.

My husband and I were planning dinner with friends. He suggested a restaurant.

“Yes, it’s nice,” I said. “But I can’t hear anything in there.”

“It’s great,” he replied. “I don’t think it’s loud.”

He is lucky I did not hit him.

I looked at him and asked, “Did you not hear what I just said? I am, after all, the deaf one.”

He repeated himself.

“Yes,” I said. “It’s not loud for you.”

For me, the acoustics are terrible. There’s loud music, dozens of conversations, clattering plates — and I hear everything and nothing all at once. I just sit there, feeling like a decoration. Me and my ear.

I explained myself again. I’m not sure he fully understood. But we’re going somewhere else — somewhere that won’t leave me with a migraine and screaming tinnitus.

It’s funny how I do not hear, and he does not listen.

Maybe funny. Maybe a little sad.

Redefining Useful

One of my new year resolutions was to strive to do something useful every day. I did not define “useful” on purpose; I decided that useful would be anything that deemed useful to me.

Over the last three or four weeks, I did do a couple of useful things. I took a vacation. I swam with manta rays and snorkeled in the Bahamas. I organized one shelf of my yoga pants. And today, I watered the garden.

To some, all of this might seem menial and not really useful, but to my overwhelmed brain, every one of these things was useful.

My brain has been in overdrive for the last couple of months — family health issues, work, and everyday life. Sleep has not been good, and worry took over.

So taking some time off has been useful, including “just” watering the patio today.

Make your own useful to-do lists. Make sure they work for you. And take mental days as well — trust me, they are useful.

The Scale, the Dog, and the Skinny Prince

The passenger Prince complained this morning that he cannot lose half a pound. He was lucky I did not throw a shoe at him. Passenger Prince is a six-foot-two man who weighs 165 pounds — and that is only if the dog puts her paw on the scale when he stands on it.

And me: a five-foot-nothing post menopausal woman, on Wegovy, who does Pilates four times a week, exercises and takes 10,000 steps a day. After losing 45 pounds in a year and a half, I still weigh the same as I did the day I had my last baby.

Technically I can tell people that it’s still pregnancy weight — except the baby is twenty-five with a job and a 401(k). But who would want to argue with a postmenopausal woman?

Having a skinny, tall husband is not great for self-esteem, especially at my age. Before the Wegovy, hearing him complain about his weight was not easy. Luckily for him, I lost my hearing and could tune him out when he complained.

I weigh less than him now after 18 months of injections and lots of Pilates and gym visits. But alas — it is what it is: him being a skinny, tall man, and me being a curvy, petite woman. And yes there is a shoe in one hand, ready to be thrown.

How to Shower Wrong: A Tired Person’s Guide

Or Waterproof? Asking for My Hearing Aids.

The unthinkable happened this weekend — I forgot to take my hearing aids off before getting into the shower. First time ever in five years that this has happened to me.

Hearing aids are expensive. These were my first pair, the ones I got when I first lost my hearing, and they were very expensive. Back then, we had great insurance that covered the full cost of a top-of-the-line pair. That was several insurance companies ago.

Ever since then, I’ve dreaded getting them wet or breaking them. They’re my lifeline. Usually, the first thing I do before stepping into the shower is touch my ears to make sure they’re out.

But today, I forgot.

I was tired — I hadn’t been sleeping well for the last couple of nights. The Passenger Prince had to do a 72-hour at-home EEG study, which meant a camera was set up on him at night. The camera had night vision, and that little light kept waking me up. I like complete darkness when I sleep. I thought about crashing in my home office but decided against it for the sake of comfort. Comfort that completely escaped me this weekend.

My Passenger Prince, who on a normal day would enjoy me running out of the shower naked, was not thrilled with my sprint this time. As soon as I noticed my aids still in my ears, I bolted out of the shower to dry them off — dripping water all over the bathroom and the laminate floor in our bathroom.

Maybe tonight I’ll finally sleep.

The Sounds We Forget to Hear

The Sounds We Forget to Hear

Hearing is something most of us take for granted. We rarely pause to notice the sounds that surround us—the rustle of leaves, the hum of traffic, the laughter of children. Instead, we walk through life plugged into headphones, filling every moment with music, podcasts, or phone calls. We wear them when we walk, talk, commute, and definitely when we exercise.

This week, my youngest made crème brûlée. She’s been perfecting her recipes lately and this time offered dairy-free, vegan, and lactose-free options. In our household, that’s not just a nice gesture—it’s a necessity. We are a home full of celiacs, lactose-free lifestyles, and IBS sufferers. My children, poor things, didn’t need a genetic test to prove maternity—they inherited all my “fun” genes: the celiac gene, the IBS gene, and definitely the lactose intolerance gene.

But here’s the moment that gave me pause: as she torched the sugar on top of the crème brûlée, I heard it. The delicate, satisfying crackle of caramelizing sugar. That beautiful, subtle sound was only possible for me to enjoy because I had my hearing aids in. Without them, I’d have missed it entirely. That tiny moment of joy made me think about how much we miss when we don’t stop and really listen.

Take Charlie, our neighborhood squirrel. Charlie is something of a local character—and a sworn enemy of our dogs. (They’re terriers. It’s instinct.) Charlie, bold as ever, hisses at them from his perch on the tree. Every time he does it and I actually hear it, I can’t help but laugh. It’s such a strange, small sound—one I never noticed before hearing aids. But now I hear it, and every time I do, I’m delighted.

When I was younger, my mother used to warn me: “Don’t listen to music so loud—you’ll ruin your hearing!” I wish that was the reason I have hearing loss. But for me, it’s just part of the hand I was dealt.

I remember the day I got my first hearing aids. My audiologist looked at me and said, “Just a heads-up—the world is loud.” She wasn’t wrong. It is loud. But it’s also incredible. Hearing the world—even when it’s loud—is a gift.

So if you can hear the birds in the morning, the hiss of a squirrel, or the crackle of sugar on a homemade dessert—pause for a moment. Take your headphones off. Listen. The world has so much to say, and it’s worth hearing.

I’m a Prepper—But Not the Doomsday Kind

I’m a prepper. Not the doomsday, bunker-digging kind—but the worst-case-scenario type. I always have a contingency plan, and honestly, I blame my engineer husband for that. I used to be a carefree human being. But after almost forty years together, I’ve been… optimized. Ruined, if you ask me.

They say you eventually start to look like your dog or your spouse. Mine are both tall and hairy—I am still neither. But I have adopted my husband’s practical, forward-thinking mindset, even if I haven’t grown a beard.

I love to joke that it’s all his fault, but truthfully, it’s not. It’s life. Being a mother while my husband traveled ninety percent of the time meant I had to be prepared and self-reliant. And that’s not even counting the ever-present car stash: snacks, spare clothes, and vomit bags—just in case.

To this day, my car still holds extra water, a blanket, a coat (even though I live in Southern California), and random supplies I might never use—but might need. That’s just who I am now.

Of course, it wasn’t just motherhood that turned me into a prepper. Chronic health issues played a big role. With IBS, I learned to identify clean bathrooms in any location, faster than a GPS could. With Celiac disease, I memorized every gluten-free menu within a 20-mile radius. And now, as my hearing declines, I’m prepping for a future where my job might need to adapt to my changing abilities.

I started researching careers that suit people with hearing challenges—something less dependent on constant interaction. Coding and accounting popped up frequently, but both sound painfully boring to me. Living in near silence is one thing; adding tedium on top of it feels unnecessarily cruel.

Then I fell into the rabbit hole of side hustles: everything from selling foot pics (a hard no) to flipping items on Poshmark, eBay, and Mercari, or trying affiliate marketing, blogging, or becoming an influencer.

Influencing sounded promising—until I realized I dislike makeup tutorials and find most influencer videos kind of annoying. So much for that.

But I did start a Poshmark closet—and surprisingly, I’m enjoying it. It’s fun, but not easy. Finding good deals to resell takes patience, organization, research, and planning. A lot more work than people assume.

Blogging? That’s also enjoyable, but creativity doesn’t always clock in when I do. Some weeks, my brain just refuses to show up. And without a clear niche, it’s easy to feel stuck.

Someone recently asked me why I’m exploring all these side hustles. I told them: I’m prepping. I’m prepping for the day when my hearing aids stop working well enough. I’m prepping for retirement. I’m prepping for life—whatever it throws at me.

Because that’s what I do. I’m a prepper.

And honestly? It’s not a bad thing.

When Fireworks No Longer Spark Joy

When Fireworks No Longer Spark Joy

The Fourth of July has always been one of my favorite U.S. holidays. For years, I’d buy my kids those iconic Old Navy 4th of July T-shirts, and we all loved the fireworks, parades, and festive fun that came with the day.

But several years ago, my love for fireworks changed.

The last Fourth of July I could still hear was during the height of the COVID pandemic. That year, it felt like everyone in the neighborhood had their own personal fireworks stash. The noise was relentless, and the dogs were not happy.

And “not happy” is an understatement—they were terrified. The fireworks didn’t stop for days. Our Airedale, Sage, went from a dog who loved long walks to one who would only go outside for the bare minimum, then rush back inside immediately.

This pattern continued for several years. As the holiday approached, so did Sage’s anxiety. What was once a cheerful, barky dog became increasingly withdrawn. Last year, just a day before the Fourth, she passed away from a heart attack. We believe the ongoing stress from the fireworks played a role.

Sage wasn’t alone—our other dogs hated them too. Every year, we’d shut all the windows, crank up the TVs and radios, turn on white noise machines—anything to help calm the pack. We even timed walks carefully to avoid dusk or random fireworks going off early.

For the past five years, someone in the family always stayed home with the dogs on the night of the Fourth. This year, that person was me. My husband and adult son were biking through Europe, and the other kids had plans. I was happy to stay home and keep the dogs company.

I did manage to attend the neighborhood parade, which was a joy. Seeing kids with their decorated bikes, full of excitement and laughter, brought back good memories.

But then night came—and it was miserable.

The fireworks didn’t stop until 1 a.m. Even without my hearing aids, I could hear them. The poor schnauzer was inconsolable, hiding in the shower or buried in the closet under my clothes. Shuki, our Airedale, wasn’t doing much better. None of us slept until silence finally arrived around 2 a.m.

As I tried to comfort the dogs, I couldn’t stop thinking about veterans and others with PTSD. How do they cope with this night? Fireworks are beautiful, yes—but they’re also loud, jarring, and triggering for many.

So I find myself wondering: should cities still sponsor fireworks displays? Is there a better way? Could we move fireworks to more remote, open areas? Or use drones and silent light shows in more densely populated neighborhoods?

I’m pondering all of this today, sleep-deprived, with two dogs still glued to my side.#FourthOfJuly, #PetSafety, #FireworksDebate, #PTSDawareness, #DogLovers.

Broken Hearing Aid? Worse—A Broken Ear

The Only Thing Scarier Than a Broken Hearing Aid

There is nothing more frightening to a hearing aid wearer than a broken hearing aid—or so I thought.

Yesterday, I had severe issues with my hearing aid. I couldn’t hear anything in my left ear. I kept adjusting the settings, raising and lowering the volume. I deleted the app on my phone, reinstalled it—nothing worked.

When my hearing aid doesn’t function, I can always tell. Besides the obvious issue of not being able to hear, my tinnitus gets noticeably worse.

I tried everything: turned the hearing aid off and on, charged it fully, even put in my old hearing aid. That’s when I realized—it wasn’t the hearing aid that was broken. It was my ear.

I had lost all hearing in my left ear.

And that is even scarier than a malfunctioning device. A hearing aid can be fixed. A non-functioning ear? That’s a different issue altogether. Sometimes, even the best technology money can buy isn’t enough.

After that realization, I made an urgent phone call to my audiologist and scheduled a dreaded appointment. Then, I made the mistake of checking with Dr. Google—and that was not a good idea. Dr. Google is very scary.

Work today was a challenge. Not being able to converse or understand what people are saying to you is incredibly isolating. But my coworkers were understanding. They adapted things so I could still work, and I really appreciated that.

Today was not a good day.
I hope tomorrow will be better.

#hearingloss #brokenhearingaid #toughday #phonak

Hearing Aids, Stigma, and My Story

I had an interesting conversation with my mother the other day. She told me about a friend she met for coffee, who mentioned that her husband refuses to wear hearing aids. Apparently, his doctor told him that wearing hearing aids would hurt his brain.

I’m not sure which doctor he saw—because even “Doctor Google” isn’t that misinformed.

I told my mom that he probably doesn’t want to wear them either because of the cost or because of the stigma. For many people, hearing aids still carry the perception that they make you look old. I wear hearing aids myself. I’ve worn them for the past five years, ever since I lost my hearing overnight. I don’t think I’m old—but I guess that depends on who you ask.

When I lost my hearing, it took a few months for my insurance to approve the hearing aids. They’re expensive, and since I have severe hearing loss in one ear and moderate loss in the other, I needed high-quality aids—not the over-the-counter ones. The first pair I got cost nearly $6,000, but I was very lucky: insurance covered the full amount.

I completely understand people’s hesitation when it comes to the cost. Hearing aids are expensive, and the technology changes—and thankfully improves—each year. But for many adults, cost isn’t the only issue. There’s also a stigma. Some people see hearing aids as a sign of aging or weakness. And yes, it’s true that we lose some hearing as we get older. But that’s not the case for everyone.

In my case, my hearing loss was sudden. My ENT told me it was likely caused by a virus that attacked my system. One day, I could hear everything around me. The next day, my world went silent. My life changed forever.

Thankfully, hearing aid technology is incredible now. The devices are smaller, more advanced, and some even come in fun colors. I will never hear “normally” again, and I’ll always need hearing aids to stay productive and connected. But I wear them proudly.

If you’re struggling with hearing loss, don’t let fear, shame, or stigma stop you from getting the help you need. There’s nothing weak or “old” about using technology that helps you live your life fully.

#HearingLoss #SuddenHearingLoss #HardOfHearing #HearingAids #MyHearingJourney #HearingAidUser #BreakTheStigma #LifeWithHearingLoss #DisabilityAwareness

Five Years After Hearing Loss: The Things No One Told Me About Hearing Aids

Junk Drawer Finds and Hearing Aid Memories

I was clearing out one of my many junk drawers as part of my 2025 clutter mission when I found the receipt for my first hearing aid. It instantly brought back everything I went through that year.

From the moment I realized that I really couldn’t hear—and that it wasn’t temporary—to finally accepting that I needed hearing aids just to get through everyday life. I stressed constantly about how I’d manage at work and even more about the cost of the devices.

It took months of back-and-forth with insurance to get them covered. Then came the “test-driving” phase, followed by several more months of getting used to the new sounds and training my brain to adapt.

What they don’t tell you is that the world is loud. And they definitely don’t tell you that hearing aids won’t restore your hearing to what it once was.

I learned that loud places are overwhelming, movie theaters are actual punishment, and despite all the technology available, I still won’t be able to follow every conversation. It hit me hard—so hard that I spiraled into depression and grief.

And people… well, some people are completely clueless. One of my favorite comments (read: least favorite) was:
“But you don’t look deaf.”
Apparently, I forgot to wear my antennas that day.

Another time, I asked someone to repeat what they said because I didn’t hear them, and they responded by leaning in and yelling directly into my ear. The shock on my husband’s and my face must have been priceless.

Now, five years and a second hearing aid later, I’m still adjusting. Still learning to live with the fact that I’ll never hear “normally” again.

I wonder what I’ll find next week when I tackle another junk drawer. Hopefully something better—like forgotten money from a year ago.

#hearing loss journey #adjusting to hearing aids #living with hearing loss

#hearing aid struggles #hearing loss depression