Tag: disability

Why I Finally Started Taking Time Off (And You Should Too)

I took a day off today—not for any special reason, but simply because I maxed out my vacation hours and am no longer accumulating any more. Since that’s the case, I’ve started taking a day off every other week, turning my weekends into three-day breaks.

I have too many unused vacation days—not because I didn’t have plans, but because I was never allowed to take them. There was always something more urgent that needed to be done. For a long time, I was semi-okay with this. And then, one day, I wasn’t anymore.

I’m not sure if it’s related to my age, or the fact that I’m finally at a point in my life where I’m financially secure enough to work because I want to—not because I have to. Maybe it’s just that I’ve realized I need to take care of myself first.

There should be no reason for anyone to max out their vacation days. We should take time off.

Time off energizes us. It gives us time with our families, offers us mental space, and helps nourish our souls.

Some companies pay you for unused vacation days. Mine doesn’t. But honestly, I don’t want the payout—I want the time.

Today, I cleaned out one of my junk drawers, took a nap, and finally watched a TV series I’ve been meaning to catch up on. And I had time to pause and think about the future and what I really want.

Do I want to keep working for a company that doesn’t let me take time off? One that doesn’t seem to care about burnout or mental well-being?

In the middle of my day off, my boss texted me asking where I was. I reminded her I was off—we had talked about it. She replied, “You didn’t, and it’s not on my calendar.” But it was on her calendar. It was also on the calendars of the people covering for me. In fact, the whole office knew I was taking the day off.

At the end of the day, we are all replaceable. It wouldn’t take long for my company to post a job ad and find someone new. But the time I lose—I don’t get that back.

I’ve already planned out a few more days off over the next three months. Maybe on one of those days, I’ll even update my résumé—or apply somewhere that does value employees taking time for themselves.

#Work-life balance  #Burnout #Time off #Mental health at work
#Employee wellness #Career reflection

Bread Trucks and Blood Pressure: Finding Humor in Life’s Challenges

funny. You see, I’m a Celiac — I can’t eat gluten because of an autoimmune disease. I was diagnosed with it as a “birthday gift” on my 39th birthday, and as a former carb-lover, giving up bread and pasta wasn’t easy. Back in the day, gluten-free options were hard to come by and, frankly, not very tasty. And, let’s be honest, gluten-free bread is still the size of a postage stamp.

Life these days is hectic, crazy, and sometimes full of stress. Lately, work has only made it worse. My cardiologist told me I need to lower my blood pressure. I asked him how to do that when people around me constantly annoy me and drive me crazy. I’m still waiting for a solid answer to that question.

I try not to take everything too seriously — not because I think life is a joke, but because we’re all dealing with serious things. We need to find humor in what surrounds us. Unfortunately, that doesn’t seem to help much with my blood pressure.

Losing my hearing was tough. I went through the stages of grief because losing such an important sense impacts my quality of life and everyday well-being. But five years later, when people ask how it affects me, I joke that it’s actually a blessing for my husband — I don’t hear any of his annoying remarks anymore.

So, having a bread truck full of gluten following me around was pretty funny. Who knows, maybe it’ll even show up in my dreams tonight.

#GlutenFreeHumor #CeliacLife #FindingTheFunny #LaughThroughTheStruggles
#CeliacWarrior #HealthWithHumor #BreadTruckChronicles #AutoimmuneLife #GlutenFreeJourney #StressAndLaughter

The Importance of Patient Communication in Healthcare.

Or Bruised, Bandaged and Ignored!

This morning, I had my routine monthly blood tests. I get these quite often and know my body—and my veins, which are sometimes tricky. When I arrived at my appointment, I noticed a new phlebotomist. As usual, I explained that my veins tend to roll and that one side is better for drawing blood.

Unfortunately, my advice went unheard. Not only did he overlook my concerns about my veins, but he also failed to address my need for clear communication. I had told him that I am hard of hearing and need him to speak directly to me instead of turning his back.

I work in a fast-paced customer service job, speaking with many people every day. At the end of a long day, all I want is to remove my hearing aids and enjoy the silence. Having spent most of my life in customer service, I understand the challenges of balancing customer demands with providing quality service. But I also know that true service goes beyond just hearing; it’s about truly listening.

Dealing with an invisible disability comes with unique challenges. Listening to people costs nothing but can make a huge difference. Today’s experience highlighted a gap in how some service providers train their staff—not just in technical skills, but in valuing patients as individuals. It felt as though I was just another patient being processed through a conveyor belt.

By the time I left, both of my arms were sore, bruised, and bandaged. But what left the deepest mark was the feeling of being ignored.

Nothing makes sense

What happens when you lose your hearing? Do you suddenly get a superpower ? A brand new sense or an enhanced one. They say that when you lose a sense, another sense gets stronger to compensate. When I lost my hearing there were no sudden bells, whistles or trumpets announcing my new strengthened alternate sense. Most likely because I could not hear them.   Nothing exciting happened, I did not become spiderman and the only superpower I got was the on and off button on my hearing aids. Hence my lovely pair of hearing aids, nice expensive silver colored. Not even a fun blue color to match my eyes.

My sense of smell did increase slightly  but I am not sure that this is a good thing considering I have a dog and a grand dog.  While I did loose a major sense I did gain observation, not by choice but by necessity. Since I can’t always follow a conversation I started to pay more attention to facial expressions and body language. You learn a lot from watching people and standing on the sidelines. In big crowds and noisy places it is very hard for me to hear, so standing on the sidelines was out of practicality. You see if someone is uncomfortable, happy, deceptive and you start getting a sense of what they actually think and feel from their body language. For me it is still a work in progress to understand everything I see but this is a welcome challenge and a it is little entertaining.

You also learn a lot from looking at people’s faces when they speak to you, surprisingly many are not comfortable with people looking at them directly. Might be that eye contact with humans was lost during the pandemic zoom era. But as a hearing impaired person it is a valuable tool as I am learning to read lips.

My husband would say that despite my new observation skills I still do not pay attention to what he says, but in all fairness I didn’t pay attention before I lost my hearing so technically it’s a habit and not a choice and maybe a tiny superpower. I took me 35 years together to perfect this skill.

Valuing your time as a patient

I had an 8 am doctor’s appointment the other week, the office called to confirm and requested that I arrive at 7:45.  I have been a patient of this doctor for more than 20 years, in those 20 years my appointment has never been on time, I love this doctor and he usually runs late as he takes time with each patient and really listens so I don’t mind usually but as I am aware that he runs late I try to be his first appointment of the day, hence my 8am appointment. But even me being his first appointment I know he will be late as usual, this time he saw me at 8.25am.

I did not arrive at 7:45 as I am very aware he takes his time, I arrived at 7:58am and with me all the medical staff arrived as well. I was even there before the nurse arrived and felt like I should turn on all the lights in the office as well. I was not called in until 8:10am.

So why do these schedulers not value  our time? If I had actually been there early, that would have meant almost 40 minutes of just waiting there. Shouldn’t there be an appreciation for the patient’s valuable time as well as the doctor’s time? 
Sadly, this doctor’s appointment was actually one of the most efficient ones. I had another appointment with a different doctor lately that  had me waiting for 30 minutes in the waiting room and another 45 in the exam room, when I asked his medical assistant if he was running late today, she looked at me in wonder and goes no, he is on time, to which my reply was really, I have been waiting for an hour and half already. I have canceled all future appointments with this practioner as this was the second time in a row that I was left waiting for hours and will be shopping around for another doctor. It seems like some medical practitioners overbook and value their own time but not their patient’s time. Yes, if the doctor has had some emergency this is expected, but most cases this is not the reason for leaving us in a waiting room in a paper robe cold.

So who’s time is more valuable? CVS just announced that their pharmacies will have less hours and will close earlier in the day. Those who need to pick up their prescriptions will have to go get them in the middle of the day or during lunches or wait for  the weekend and delay taking them,again the focus is not on the patient. When did the medical field change from being patient focused to being corporate focused.

 Every one’s time is valuable, us waiting in a doctors office to be seen for hours or running to the pharmacy instead of eating lunch as well as the service providers,  there must be some middle ground and respect between everyone’s needs.

Listening to your body

We always say that we don’t have time to be sick but truthfully no one has time to be sick or really wants to be sick. That’s usually when the universe finds us and shows us how much it really cares about our time line. This week it’s my turn, I postponed going to the doctor  and gave myself many excuses of why it’s not a big deal. Of course I ended up with antibiotics and even more medical procedures that will take more of my  time this week. I should have known better and  listened to my body, for sure. I am after all a grown adult.  

But I guess even  I don’t listen to my own advice. My first inclination was to be upset with myself as  I just postponed the inevitable or probably made my condition worse . I actually did make it worse and my dr was  not very happy with me. So now  the question is what have I learned from this week? For starters I need to Listen to my body  and commit to taking better care of myself. Not only for me but for my family as well. I should also practice what I preach.

Tales from the left ear January 2023

Just because some of us are different does not make us worse than someone else. There are stigmas for being hearing impaired, we are old, we are mentally challenged, we are not as intelligent and we have selective hearing and these are just some of them. 

Hearing aids come in ugly colors, there are no fun ones probably because the manufacturers think that we want to hide them as well. My hairdresser asked if she needed to cut my hair so no one would see them. I don’t hide my hearing aids, I love my hearing aids as they allow me to function but I do wish they were blue or sparkly purple. I dont hide them at all and wear a ponytail most of the time.  I don’t hide my hearing aid but it is not obvious to the general public as mine are small. So when I talk to new people I explain my hearing aids and that you need to look at me when you speak. 

Sometimes people are weird, I had a person then go to my ear and yell straight in my ear, needless to say that this hurt like hell and most likely I will not interact willingly with that person again. The other response I usually get is how did I lose my hearing and when I explain that a virus attacked my ear, they seem to back away thinking this is infectious. Of course I have those who just tell me how sorry they are for me. Again people are weird. People tell me I am very well adjusted for someone with this loss, but then again I am an eternal optimist although even I have my good and bad days.

I am different, I am not better or worse, just different!

Hearing Aids Cost

My left ear has gotten a new hearing aid, I love the new aid. Everything is clearer, it is water proof so I don’t have to panic when I enter the shower or be afraid to walk in the rain anymore. Or even take them off at the beach or pool and not be able to communicate with others while at the beach.

My last couple of vacations were not as easy ever since I lost my hearing. At the beach or the pool, I took the hearing aids off and was disconnected from the world around me. When we went on a boat ride I was so worried they would get wet that I didn’t wear them at all and made sure to put them in a waterproof bag. 

I am glad technology finally caught up and people with hearing loss can function better now in more situations, but the cost of this catching up is a lot. These hearing aids are expensive and insurance companies cover a fraction if they cover anything at all. We are talking between $3000 to $5000 and these aids need to be replaced every couple of years. This is not an expense that is trivial. A friend asked me a while ago what did my husband get me for our anniversary and my reply was new hearing aids.

Unfortunately those with moderate to severe hearing loss can not use the over the counter cheaper aids so that is not a solution. Costco has a nice selection of hearing aids but not from all the companies and not for all the devices available. 

 I believe that just like pre existing conditions were  outlawed from being denied insurance coverage, there needs to be a movement to add hearing aid coverage to regular insurance.  

Trying New Things- Zumba Edition

Instead of waiting for next week, 2023, to start new things, I decided to start today. You hit the iron when it’s hot! So today I went with a friend to zumba. I have never done zumba before, didn’t want to try zumba before but my friend convinced me and I said fine, let’s see. 

I woke up this morning ready, muscles were warm from walking the dog already and my Shakira hips were ready to shake. To those who don’t know, zumba is like a school playground. There are favorite spots and locations, you have those who like to be in the front next to the instructor, there are those who like to hide in the back because they are uncoordinated. But being in the back means everyone that goes down the stairs or is on the other side of the glass sees you shaking your ass coordinated or not. So choosing a spot is tricky. If you go to the front and you are new you are bound to get stared down, front rows apparently are saved for the regulars. However if you have no clue of what you are doing  and you need to see the instructors movements you really need to be in the front, especially in busy crowded classes. 

Some wear elaborate zumba outfits with full hair and make up done, some wear the necessary sweatshirt around the waist so no one actually sees your ass shaking. I was in my regular yoga and t-shirt gym outfit and was guided by my friend who is a regular and saved me a spot in the second row, talk about pressure! She was asked if she knows me and if I am her friend. I have to say that zumba is not easy, it requires coordination and rhythm. Luckily I have rhythm, coordination not so much. But we had fun, burned some calories and tried a different skill , my body hurts all over and I see a Costco size pain killer container in my future. But I will go again as I have to admit, it really was fun.

Being hearing impaired is not a choice, being a kind courteous person is!

I am a member of many hearing loss groups on facebook, when I lost my hearing they helped a lot with not feeling alone and finding someone who understood my struggle of dealing with losing my hearing overnight.

Most days I am good and I believe I have adapted mostly to my current situation, but we all have our bad days. Days when the ringing in the ear is so loud that it does not matter what setting your hearing aid is on , you can hear absolutely nothing. Days where you can not figure out what people are saying no matter what. These are very frustrating and depressing days and can throw you into a loop.

During the pandemic and even today in some places, there was masking all around & plastic barriers made it hard to hear for most humans but for those with hearing loss made it absolutely impossible, add to that the ability to read lips was gone as well and sometimes even the ability to read the facial expression was gone.

These days medical facilities still require a mask. I always make a point to tell the reception that I am hard of hearing and if they can make sure to let the people who will call me to either say my name louder or to approach me when it’s my appointment time. A lot of people are nice and say yes, sure. But when it comes to actuality, they all forget. 

The weirdest place I had that issue was at the ENT/Audiologist office. You would think that in these surroundings they will be more accommodating or understanding. But no! Music was loud on the TV in the waiting room, no closed captions and receptionists with shields who talk to the computer instead of lifting their heads when they speak to you.

Who needs to adapt? The customer service industry or the hearing impaired person? For the hearing impaired there is not much adaptation, it’s not like you can wake up one morning and decide today I shall hear. Even with my very expensive aids, there are times that I have no clue what someone is saying and I am not going to hide under a rock just because I can’t hear anything.

Customer service industry needs to adapt and workplaces need more training on how to intercat and integrate people who have disabilities as they are part of society.  Talking to people while facing them and not staring at your phone or computer should be taught early, this is a social skill that is important in any situation. If anyone asks you to repeat a sentence, repeat it and do not say “ oh, it doesn’t matter”.

Being hearing impaired is not a choice, being a kind courteous person is!